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A revolution in understanding pain – interview with the author of ‘Pain is Really Strange’

Haines-PainIsReallyStrange

 

 

 

In this interview Steve Haines, author of Pain is Really Strange, discusses the topic of pain, he explains the reasons behind his choice to write a book about it using the graphic medium and tells us what people can do to manage pain.

Read the edited interview here:

Why do a book on pain?

There’s an awful lot of pain around. There was a huge survey done in Europe: 1 in 5 people experience chronic pain. They have persistent or severe pain for more than six months. For many of them, the median time was a number of years.

People manage large amounts of pain. Pain is a universal human experience; everybody knows what pain is.

The really exciting news is that there is a revolution in how we understand pain. The goal of the book is to try and explain that. How pain works is actually a little bit counterintuitive, a little bit strange. Some of the things that people think cause pain actually turn out to be not quite as central as folklore would have it.

Why do a graphic book on pain?

Education is a central tool in changing pain. The goal of using images it to make it light and really accessible. A good image can communicate an argument and idea very quickly. The book emerged from lots of lectures and talks I’ve given over the years. I have been endlessly trying to find creative ways of explaining how pain works to my clients and students.

I was incredibly lucky to meet Sophie Standing. I have really enjoyed how she’s visualized the work. She surprised me sometimes about how she took an idea that I’d been familiar with for a number of years and just showed it in a very different way.

I think that graphic novels can be very powerful tools. Pain Is Really Strange is short and sweet, 36 pages, but there’s an awful lot of information packed into the book. The images try and really crystallize ideas into something simple.

 Who is the book aimed at?

The book is for everybody. Everybody experiences pain, and I think everybody can learn from the new science. The current research can really help us change our idea and experience of what pain is, even really difficult chronic pain.

I would offer that everybody should be able to stand, walk, sit, and sleep, without issues. You might not be able to run a marathon anymore, and you might not have the best tennis serve that you had when you were in your 20s, but ordinary movements of sitting, standing, walking, lifting your shopping; it’s actually often possible to get people to a place where they can do those everyday functions with ease reasonably quickly. That makes a huge change in happiness and vitality

What is the central message of the book?

There is something that you can do to change your pain experience. There’s always a change in behaviour, a change in how you think, feel, move that can be used to creatively stimulate your brain to do something different.

The really central message is: think of pain as a bad habit or an alarm system that has gone wrong. Short-term it was very useful, but long-term chronic pain serves very little purpose. We can unlearn the pain habit. We can train our nervous system to respond differently to the information that’s coming in.

What is the hardest thing to explain about pain?

By saying: “Pain involves the brain,” people often feel that you’re saying that it’s their fault. That’s really not what I am saying. I like to talk about the mind, the brain, and the body. The mind is our consciousness, our awareness, our sense of self. The brain is in between the mind and the body. Pain is an output from the nervous system, not an input.

The brain can make mistakes. It gets into habits or reflexes. Evolution has taught us to respond to the threat of danger very, very quickly, and sometimes in those quick responses, we go down fixed, hard-wired, old patterns that are hard to break out of. But, and this is the important bit, reflexes and habits are responsive to new learning; we can learn to respond differently.

There’s no one answer to pain. For me that’s very exciting, but it can feel overwhelming and confusing. It implies that creativity, learning to do things differently, is possible. A complex nervous system will benefit from a multitude of responses. Culture, society, family, stress, how we eat, emotion and metabolic activity in our body are all deeply relevant to the pain experience.

What can people do to manage pain?

Mostly, it’s about being creative. Do something different. Whatever you’ve been doing, if you’re still in pain, it’s not working. Try a new approach. We can move differently, understand differently, feel differently, describe ourselves differently. The book explores some simple hints about how we might do those things, but the essence is change and creativity in response to the danger signal, and not going down fixed, hard-wired responses.

Understand that reflexes that were useful when you really needed to protect the tissues as they repaired are no longer useful after the tissues have repaired. Tissue repair takes no more than a few months. In chronic pain the nervous system needs recalibrating.

For me, the book is a very hopeful book; there is something you can do to change your pain experience. Pain isn’t about tissues. It’s about an alarm system in the nervous system that’s exaggerated and is no longer accurate about the state of the tissues.

Steve Haines, June 2015

Or listen to the full interview here. Linda from Singing Dragon asked Steve Haines some questions…

Steve Haines has been working in healthcare for over 25 years and as a bodyworker since 1998. He is the co-author of ‘Cranial Intelligence’ and author of the short graphic books ‘Pain Is Really Strange’ and ‘Trauma Is Really Strange’. Understanding the science of pain and trauma has transformed his approach to healing. He has studied Yoga, Shiatsu, Biodynamic Craniosacral Therapy, and Trauma Releasing Exercises (TRE). He is a UK registered Chiropractor and teaches TRE and Cranial work all over the world. His treatments now use education, embodied awareness and light touch to help people move more freely and be more present. Steve lives and works between London and Geneva. 

Treatments: www.stevehaines.net Teaching TRE: www.trecollege.com Teaching Cranial: www.bodyintelligence.com Graphic Books: www.painisreallystrange.com

 

 

 

Putting life first and CRPS second

Karen Rodham is a health psychologist who has spent seven years working exclusively with people who are living with Complex Regional Pain Syndrome (sometimes known as Reflex Sympathetic Dystrophy or RSD).

Karen 2aImagine your loved one has developed a pain condition. Medicine does not reduce the pain, they can’t tolerate being touched in the area affected by the pain; they find it difficult to leave the house because they are afraid that someone might accidentally bump into them;  they are less tolerant than they used to be and they can no longer do the things they used to do. You are desperate to help them, but nothing seems to work. You can’t even give them a hug because this makes their pain worse. How might you feel?

 

Complex Regional Pain Syndrome (CRPS) is a pain condition. Most people who experience it improve in the first year, but for a significant minority (up to 20%); CRPS becomes a chronic long term condition. The key symptom is burning pain, but this is a kind of pain that medication barely affects and because of this chronic CRPS is a very difficult condition to live with. Other symptoms include: swelling, colour and temperature changes, hypersensitivity, as well as increased sweat and hair growth in the affected area(s).  Although the symptoms are usually experienced in a single limb, it is possible for CRPS to occur in more than one limb, and indeed in other body regions. In addition to all of this, it can take a long time for CRPS to be diagnosed because the symptoms could also be a sign that other serious conditions are developing. These other serious conditions need to be ruled out first which can be a frustrating process, not just for the person who is in pain, but for their loved ones and for the health professional who is trying to work out what is going on. For the person who is diagnosed with CRPS, coping and learning to live with CRPS is not easy, but in the same way that the person with CRPS is learning to live with and cope with the condition, so too are friends, family and loved ones. So what can you do if a loved one is living with CRPS?

 

Things to do together:

  • Communication: First, find a way to talk openly and honestly about how CRPS is impacting on both your lives. It is very likely that your loved one is not only trying to come to terms with their CRPS, they are probably also afraid that they are becoming a burden. If this is how they are thinking, the chances are they will be working very hard to keep their feelings to themselves. You will also be likely to be skirting around the issue because you don’t know how to help them. This is a recipe for upset and misunderstanding for everyone concerned. Without open and honest communication you won’t be able to work out what the problems and issues are, and without identifying the problems, you won’t be able to think about how to solve them.
  • Seek external help: Many people find that those first few conversations can be easier if they use a couple counsellor. Couple counsellors can help you to find a new and non-threatening way of telling each other how you really feel in a safe and constructive way.

 

Things the person living with CRPS can do:

  • Stock Story: Many people with CRPS say that when someone asks what is wrong with them, they feel they should explain CRPS in detail. It is fine to do this, especially when you are talking with close friends and family, but it can be exhausting going over and over what CRPS is and how it affects you. One solution is to develop a stock story that gives enough information to give them the gist, without going into minute detail. Something along the lines of “I have a rare form of arthritis” works well, because people have heard of arthritis, know that it is painful and that it is a long term condition, but you can make your own stock story and find something that works for you.
  • Crisis Card: Sometimes things can get very difficult and it can be hard to know which way to turn. Rather than wait for the next crisis, it is a good idea to make a note of the coping strategies that work for you (e.g. go for a walk, phone my sister, take a bath). You could put them on a credit card sized piece of self-laminating card and carry it in your purse or wallet – that way the next time you feel thoroughly fed up, all you need to remember is to read your crisis card and be reminded of what works for you.
  • Pacing: A key aim of pacing is to make our daily activities and rest patterns more consistent. It can be tempting when you have CRPS to overdo things on your good days, but this can impact on how you feel on the following days. Doing things at a steadier pace actually helps you to achieve more in a more balanced way.
  • Building a support network: It is important to have the right kind of people around you. Some of this is to do with you being able to communicate your needs so that other people know and understand how to support you, but it is also about you growing your network and finding positive and like-minded people.
  • Change your focus: Allow yourself time to effectively grieve for what you can no longer do and then turn your attention to things you can do, or new things you can try. It is normal to feel sad and frustrated about the things you can no longer do when you are diagnosed with a chronic condition. Allow yourself time to process this and to come to terms with the idea that this is how things are for now. No-one knows the future, so you cannot predict whether you will improve or get worse. What you can do is to proactively focus on the positive. Don’t be fooled by how simple this sounds, it is not an easy thing to do, but it is a positive way of dealing with the changes enforced on you.
  • Relaxation: Stress makes pain worse. Finding different ways to cope when you feel stressed, and learning to head off stress before it takes hold can help reduce the tension you feel in your body, which in turn could reduce the likelihood of stress-related pain flares.

 

Things the family can do:

  • Keep your own hobbies going: If you can keep your interests and hobbies going, you will be able to maintain a level of normality. This will ensure that you have an external focus and will go some way to reducing the fear often voiced to me by people living with CRPS that their condition has had such an impact on their loved one’s lives that they are now a burden to them.
  • Learn about CRPS: This last point is one for the family and the person living with CRPS. Ask the health professionals who work with you for their recommendations about where to get good and accurate information about CRPS. The better informed you are, the better understanding you will have as a family about how to work together.

 

With all of these points in mind, I wrote the book Learning to Cope with CRPS / RSD: Putting life first and pain second. I share coping strategies that people who live with CRPS find work well. I have also included a chapter focusing attention Rodham_Learning-to-Cop_978-1-84819-240-9_colourjpg-webon loved ones (friends and family of people living with CRPS) who often feel bewildered, frustrated and neglected by the health profession and worry that no-one realises that CRPS impacts on them too.  It is important to remember that everyone’s CRPS journey is unique – we are all human beings with different backgrounds and experiences, but it can be helpful to know that there are a range of different strategies you can try that might make coping with CRPS a little easier. Whether you are a person living with CRPS or a person who cares about someone living with CRPS, this book should highlight how you too can move towards putting life first and CRPS second.

Last post dates for Christmas 2014

If you would like to receive your purchases in time for Christmas 2014 we recommend placing your order before midnight on the following dates (depending on which country you want to ship to)

USA – 12th December 2014

UK – 15th December 2014

Australia – 15th December 2014

New Zealand – 5th December 2014

We regret that we cannot provide accurate dates for other countries but if you email hello@intl.singingdragon.com or call +1 215 922 1161 (USA) or +44 (0)20 7833 2307 (UK and rest of world) we will do our best to find out for you. If you miss the last post dates it may be possible to express deliver your order, please call or email to find out.

Have a merry Christmas and a happy New Year from everyone at Singing Dragon!

Singing Dragon New and Bestselling titles Autumn-Winter 2014 and 2015

This fully interactive brochure has all of the new Singing Dragon titles for the Autumn and Winter of 2014 as well upcoming titles for 2015. In here you will find books on Chinese medicine, complementary therapies, martial arts, nutrition, yoga, ayurveda, qigong, Daoism, aromatherapy, and many more alternative therapies and ancient wisdom traditions.


Click on the covers or titles to be taken to the book’s page on the Singing Dragon website. If you would like to request hard copies please email hello@intl.singingdragon.com with your details and the number of copies you would like.

Request a copy of our 2014 Singing Dragon new and bestselling books

SD logo 300 x 300 pixelsOur brand new catalogue of books and resources from will be available soon.

Click here to sign up for a free copy.

Our new catalogue has essential new titles from Charles Buck (Acupuncture and Chinese Medicine: Roots of Modern Practice) and Clare Harvey (The Practitioner’s Encyclopedia of Flower Remedies).

This is a great opportunity for parents to get a hold of Damo Mitchell’s newest book, The Four Dragons as well as Ioannis Solos’ Developing Internal Energy for Effective Acupuncture Practice.

There are useful new resources for every practice like Getting Better at Getting People Better by Noah Karrasch, and the new fully updated edition of A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type) by Isobel Knight.

To request a copy of the catalogue please click here.

Click this link to see more forthcoming books from Singing Dragon.

New books coming up from Singing Dragon…

2014 has been an exciting year for Singing Dragon with the publication of some truly groundbreaking books; from The Spark in the Machine and Heavenly Stems and Earthly Branches – TianGan DiZhi, to Rasa Shastra and The Compleat Acupuncturist. But we’re not finished yet! Here are some of the exciting titles coming to you in the rest of 2014:

Buck_Acupuncture-and_978-1-84819-159-4_colourjpg-webAcupuncture and Chinese Medicine
by Charles Buck

Charles Buck, the chairman of the British Acupuncture Council, draws on three decades of study, practice and teaching in this book to provide a relevant and engaging account of the origins of acupuncture and Chinese medicine. From its pre-Han dynasty roots to Chinese medicine as we know it today, Buck covers the key texts, the main scholars and the concepts they have contributed to the greater body of knowledge. With Buck’s lucid and engaging style, Roots of Modern Practice is going to be the new ‘must-read’ resource that will help practitioners and students deepen their understanding of this great medical tradition.

Hamwee_Zero-Balancing_978-1-84819-234-8_colourjpg-webZero Balancing
by John Hamwee

The definitive guide to Zero Balancing brings this increasingly popular therapy to life. It contains a clear description of the anatomy and physiology of energy which leads on to a compelling explanation of how and why this form of bodywork can have such powerful effects. Throughout, there are illustrations which convey the unique energy of a Zero Balancing session and John Hamwee provides fascinating examples of clients, their experiences and the outcomes of the work.

 

 

Tisserand_Aromatherapy-vs_978-1-84819-237-9_colourjpg-webAromatherapy vs MRSA
by Maggie Tisserand

Breaking new ground in the field of essential oils, this scientifically based but accessible book addresses the challenge of serious infection, especially MRSA, in hospitals, in the community, and in animals. Maggie Tisserand focuses on the scientifically proven effects of antibacterial essential oils, and their usefulness in managing infection, including the ‘superbug’.

 

 

 

Hellas_Yogic-Cooking-N_978-1-84819-249-2_colourjpg-webYogic Cooking
by Garuda Hellas

Yogic cooking is nutritious, easy to digest and free of toxins, allowing you to improve your health, keep your body strong and facilitate spiritual revolution. The aim of yoga is to cultivate a physical, mental and psychic balance so that higher states of being can be experienced. This can be achieved through a balanced vegetarian diet that includes all the essential vitamins and minerals. This books contains 56 delicious and easy-to-follow recipes, with something for every occasion it is the perfect introduction to the ayurvedic approach to life.

 

Quayle_Mouses-House-Ch_978-1-84819-247-8_colourjpg-webThe Mouse’s House
by Susan Quayle

A beautiful children’s book that combines reflexology with delightfully engaging rhymes and illustrations. Written by a specialist maternity reflexologist, it features easy-to-follow diagrams and instructions for giving basic reflexology to a child during a bedtime (or anytime) story.

 

All of these books are available for pre-order now. To receive notifications for new books in your areas of interest, sign up for the Singing Dragon mailing list.

Request a free copy of the new Singing Dragon Complete Catalog for Spring-Summer 2014

Our Singing Dragon Complete Catalog for Spring-Summer 2014 is now available. With full information on our expanding list of books in Qigong, Bodywork, Yoga, Taiji, Aromatherapy, Craniosacral Therapy, Chinese Medicine and a variety of other disciplines, our complete catalog is a tremendous resource for complementary health practitioners and anyone interested in enhancing their own health, wellbeing and personal development.

To receive a free copy of the catalog, please sign up for our mailing list and we’ll get one out to you right away. You may also request multiple copies to share with friends, family, colleagues and clients–simply note how many copies of the catalog you would like (up to 20) in the “any additional comments” box on the sign-up form.

We hope you will take advantage of this opportunity to get more information about our outstanding new and forthcoming titles such as The Spark in the Machine by Dr. Daniel Keown and The Four Dragons by bestselling author Damo Mitchell. The catalog also contains information about the newest forthcoming paperback from Jennifer Peace Rhind, Listening to Scent and the most recent addition to our growing nutrition list, Eat to Get Younger by Lorraine Nicolle and Christine Bailey along with over 150 additional books, DVDs and other resources.

Click this link to see a listing of new and recent titles from Singing Dragon.

To request a copy of the Singing Dragon complete catalog, please click here to fill out our sign-up sheet. Please be sure to click any additional areas of interest as well. You should receive a copy of the catalog within two weeks.

Don’t expect it to go right – by Chris Mitchell

I have been asked frequently of late about whether or not mindfulness ‘works’. Personally, I think it neither does nor doesn’t work as it is something that one can neither succeed nor fail at. I appreciate that just because it can have an effect on the quality of life for some individuals with Asperger’s Syndrome, including my own, it doesn’t necessarily mean it is for all. It can be easy to become put off from mindfulness practice when one feels that their mind wanders so much that they can’t calm it, and become more frustrated through just ‘trying’. But just simple noticing of the mind wandering is a good start. One of the most useful pieces of therapy I have had for coping with set-backs and disappointments is not to expect anything to go right, including mindfulness practice.

Too often when we set out to see or experience something that interests us or we are enthusiastic or passionate about or what has always been on our bucket list of things we would like to do, we almost expect to have a great time that we forget that there is the possibility that something might go wrong, and when it does, feelings can include not just disappointment, but also frustration, which in turns results in low mood.

northern light-smallAn interesting way to potentially experience disappointment as well as learn how to cope with it in a positive way is through chasing the Aurora Borealis, or Northern Lights. Some have been fortunate to have seen the Northern Lights in the UK 2014 courtesy of a recent powerful solar storm that resulted in a Coronal Mass Ejection (CME) strong enough for its impact on hitting Earth’s atmosphere to be visible much further south than normal. But as Northern Lights enthusiasts know well, more than just strong solar storm activity needs to occur to have a chance of seeing the lights, even when one is around Earth’s magnetic pole above the Arctic Circle in Tromso, Norway, a clear sky is needed and for the phenomena to be visible, solar storm activity has to be at the right level and has to happen at a certain time.

It is human nature to want an explanation as to why phenomena like the Northern Lights happen and as a result many myths have been associated with them over thousands of years, as they could appear very brightly without warning. The Sami, native to northern Scandinavia, believed that they came about when an arctic fox ran over the mountains leaving behind a mist while the Greenland Inuit believed them to be the souls of babies yet to be born.  Though solar storm activity is generally constant, even with present technology, it is still very difficult for astronomers to predict when CMEs will hit Earth’s atmosphere. With the added need of a clear sky, those on Northern Lights chases can experience either wonders or disappointment.

However, being aware that the phenomenon isn’t guaranteed to happen is a good way to prepare for potential disappointment. From images of northern Scandinavia, it can be assumed warm fire-smallthat the Northern Lights appear just about every night, but when visiting, one finds that reality and perception are two very different things, including the often harsh reality of adverse weather conditions for those who live there. After two nights looking for any signs of looking for any signs of aurora with no luck and poor conditions for aurora viewing including low cloud cover, when the adverse weather conditions of heavy snow, wind and cloud cover continued into my third night, when instead of thinking about whether or not I would see any aurora activity I had become more accustomed to the thrill of being in the Artic in heavy snow with access to the warmth of an open fire in a Sami tent, there came a break in the clouds and I managed to see a green tinge of aurora activity!

The aurora display that I managed to see was visible for only a few minutes until it was obscured by cloud again. But when it did appear, it provided me with a little reminder of how to approach mindfulness practice, which similarly with aurora chasing, not to have any expectations as to what its effects may be.  Aspects of Asperger’s Syndrome, including high anxiety, low self-esteem and depression can’t be ‘eliminated’ through mindfulness practice, but in time, the effects of mindfulness practice can help one deal with such issues, including coping with disappointments in a positive way.

During CME’s, which cause the phenomenon, the Sun loses some of its mass, which weakens its gravity, contributing to earth’s orbital period, and the year, gradually becoming longer, a reminder that the concept of clock and calendar time is neither fixed nor permanent, as are any effects of mindfulness practice. Understandably, if a person with Asperger’s Syndrome who experiences high levels of anxiety relies on the relative predictability of structured clock and calendar time, natural time as it unfolds can be a difficult concept to grasp. However, by initially just noticing reliance on structured time can help to see how it can become a controlling factor in one’s life when, including noticing certain habits that arouse from such routines. Any effects of mindfulness are more likely to arise in the much more abstract nature; natural time that we can’t often see rather than in the clock and calendar time we see frequently and come to rely on.

Just as it helps when going aurora chasing not to expect to see any aurora activity, similarly when seeking mindfulness practice, it helps not to have any initial expectations of any effects.

Chris Mitchell is the author of Asperger’s Syndrome and Mindfulness (2012) and Mindful Living with Asperger’s Syndrome (December 2013) both published by Jessica Kingsley Publishers.

Singing Dragon complete 2014

This fully interactive brochure has all of the new Singing Dragon titles for the spring and summer of 2014 as well as our complete backlist. In here you will find books on Chinese medicine, complementary therapies, martial arts, nutrition, yoga, ayurveda, qigong, Daoism, aromatherapy, and many more alternative therapies and ancient wisdom traditions.

Click on the covers or titles to be taken to the book’s page on the Singing Dragon website. If you would like to request hard copies please email hello@intl.singingdragon.com with your details and the number of copies you would like.