What is Hypermobile Ehlers-Danlos Syndrome?

Isobel Knight discusses new research, co-morbid conditions and management strategies for hypermobile Ehlers-Danlos Syndrome in this Q&A. Find Isobel Knight’s books on hypermobile Ehlers-Danlos Syndrome here.

 

For those who are unaware, could you briefly describe what hypermobility is?

A hypermobile joint is one that has a larger than normal range of movement. If you look at the figure of the elbow picture below, the joint looks ‘inside out’. Hypermobile people tend to be people we consider ‘flexible’ or ‘bendy’, and as such there is a high prevalence of hypermobility in the dance and performing arts sectors.

Hypermobility can be generalized at a range of joints – for example knees and elbows, or sometimes found in peripheral joints (e.g. hands and feet). It is perfectly possible to have joint hypermobility and be asymptomatic, but for some people their hypermobility can cause pain, dislocations, soft-tissue injuries and there can be other findings – such as extensible and stretchy skin which might be more suggestible of a form of heritable connective tissue disorder such as hypermobile Ehlers-Danlos Syndrome.

There are now new and strict diagnostic criteria in place to distinguish between those who have generalized or peripheral joint hypermobility through to those who have what is now called a Hypermobility Spectrum Disorder (HSD) or hypermobile Ehlers-Danlos Syndrome (hEDS). The diagnostic criteria that I discuss in my books refer to the old names of Hypermobility Syndrome or Ehlers-Danlos Syndrome Hypermobility-Type or Ehlers-Danlos Syndrome (Type III) – but although the name and diagnostic criteria have changed, the overall management strategies remain very much the same for these conditions.

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Why is the advice for treatment of the menopause so confusing?

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In the midst of conflicting information surrounding HRT and the best ways to treat the symptoms of the menopause, author of The Menopause Maze, Liz Efiong – inspired by recent media inspection of the issue – weighs in.

Last year, Dr Megan Arroll and I published a book for women approaching and experiencing menopause entitled The Menopause Maze: The Complete Guide to Conventional, Complementary and Self-Help Options. We set out to write a book which would inform and empower women to visit their GPs and seek the help they needed. Our book was published after the National Institute for Health and Care Excellence’s (NICE) new guidelines at the end of 2015 and presents the very latest advice from menopause experts.

On the 23rd of February 2017, an hour long documentary called The Insiders’ Guide to the Menopause, became available on BBC iPlayer*. The programme was presented by Kirsty Wark, who herself went through the menopause following a hysterectomy and took HRT for 3 years until stopping abruptly in 2002, when the health scares surrounding the study called the Women’s Health Initiative (WHI) were published. The results showed an increased risk of breast cancer for women taking HRT, which caused many women to stop taking HRT suddenly, often going cold-turkey without even consulting a medical professional. Women stopped asking their GPs for HRT, whilst GPs were also caught up in the safety issues and became less familiar with HRT.

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T.O. Walker on ‘Not My Shame’, Victim Blaming and Helping Survivors

In this Q&A, T.O. Walker discusses ‘Not My Shame‘, the media’s responsibility on reporting sexual violence and how creativity can aid recovery in sexual violence survivors.

 

What is unique about the graphic novel format that makes it an appropriate platform for highlighting issues such as trauma and child sexual exploitation?

It felt fitting to communicate experiences from childhood using the format I would have used as a child. When we remember traumatic childhood experiences, we remember them from the perspective of a child not that of an adult, and it felt important to communicate this. Showing the reader the experience through images is also more powerful than describing it because images communicate emotions directly, and this makes it harder for the reader to distance themselves or deny what they are seeing which felt important for ‘Not My Shame’.

Graphic novels are a great medium for both showing and telling a story at the same time. I wanted to immerse people in parts of my experience and emotions, but I also wanted to have a voice and comment on the experiences I was sharing, as this encourages people to reflect on what they are seeing. A graphic novel is also an excellent medium for distorting time and perception: through the images, how they are framed and the order of the panels. Given the nature of traumatic memory, this was very useful.

Finally, I wanted to create something which would be accessible to people who wouldn’t sit down and read a text only book.

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Dentistry, Orthodontics and Cranio-Sacral Integration

Thomas Attlee’s book “Face to Face with the Face” explains how Cranio-Sacral Integration can help a wide range of persistent and painful conditions involving the face and the cranial nerves – from trigeminal neuralgia, sinusitis, hearing loss and TMJ syndrome to autism, chronic fatigue and polyvagal disturbance – through a deeper understanding of quantum levels of health and the biodynamic forces which underlie the body’s inherent healing potential.

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Not My Shame: Extract

To celebrate the release of Not My Shame by T.O. Walker, we are releasing an extract from the book – please click here to view it.

This striking graphic novel gives an insider’s view of the trauma caused by childhood sexual exploitation. It tackles complex issues, including victim-blaming, traumatic memory and dissociation, but is ultimately hopeful, showing how victims can be good parents and come to terms with their past through therapy, art and caring relationships.

To read more about the book, or to purchase a copy, please click here.

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Sitting on a Chicken: Extract

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To celebrate the release of Sitting on a Chicken by Michael Chissick, we are releasing an extract from the book, featuring four interactive yoga games and poses you can use with your children or pupils!

To download the extract please click here. 

Learn more about Sitting on a Chicken here. 

Michael Chissick has written several books for children, published by Singing Dragon, please find them here.